Am J Health-Syst Pharm
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American Journal of Health-System Pharmacy, Vol. 65, Issue 6, 562-565
Copyright © 2008. American Society of Health-System Pharmacists, Inc. All rights reserved. 1079-2082/04/0602-1242$06.00


Note

Dietary supplement use in pediatric patients with cystic fibrosis

Kara L. Murray, Carlton K. K. Lee, Peter J. Mogayzel, Jr., Pamela L. Zeitlin and Beryl J. Rosenstein

KARA L. MURRAY, PHARM.D., BCPS, is Clinical Pharmacy Specialist, Perinatology/Neonatology, Department of Pharmacy, Centennial Medical Center, Nashville, TN. CARLTON K. K. LEE, PHARM.D., M.P.H., FASHP, is Clinical Pharmacy Specialist in Pediatrics, Department of Pharmacy, and Assistant Professor in Pediatrics, School of Medicine; PETER J. MOGAYZEL JR., M.D., PH.D., is Associate Professor of Pediatrics and Director, Cystic Fibrosis Center, Eudowood Division of Pediatric Respiratory Sciences; PAMELA L. ZEITLIN, M.D., PHD., is Professor of Pediatrics and Director, Pediatric Pulmonology,. Eudowood Division of Pediatric Respiratory Sciences; and BERYL J. ROSENSTEIN, M.D., is Professor of Pediatrics, Eudowood Division of Pediatric Respiratory Sciences, The Johns Hopkins Medical Institutions, Baltimore, MD.

Address correspondence to Dr. Murray at the Department of Pharmacy, Centennial Medical Center, 2300 Patterson Street, Nashville, TN 37203 (kara.bazzie{at}hcahealthcare.com).


Purpose. The use of dietary supplements and their perceived effectiveness in pediatric patients with cystic fibrosis (CF) were studied.

Methods. A descriptive survey, comprising both open- and closed-ended questions, was developed to assess current and past use of dietary supplements, identify sources of dietary supplement information, determine the perceived effectiveness of these dietary supplements, and evaluate families’ knowledge of regulations regarding dietary supplements.

Results. A total of 121 pediatric CF patients and their families completed the survey. Assessment of dietary supplement use showed that 19% of patients (n = 23) were currently using dietary supplements and 10% (n = 12) reported past dietary supplement use. A total of 5 patients reported both current and past use of dietary supplements. Almost 40% of the patients who reported dietary supplement use did not inform their primary care provider about their use. While many factors may influence a patient’s decision to begin therapy with a dietary supplement, 20% (n = 6) of patients felt their physician was most influential. Most patients (n = 104, 86%) correctly believed that dietary supplements are not regulated in the same manner as other prescription medications; however, only 60% (n = 72) would change the way dietary supplements are regulated.

Conclusion. The use of dietary supplements in pediatric patients with CF was common, although few patients and families perceived it as effective for treating CF.

Index terms: Cystic fibrosis; Data collection; Dietary supplements; Pediatrics; Regulations

 






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